An ensemble cast of Friends talk about the inward Light, the new video from Quakerspeak
An ensemble cast of Friends talk about the inward Light, the new video from Quakerspeak

My mother died a few days ago. While I’m overwhelmed with the messages of prayers and condolences, at least at some level it feels like cheating to accept them too fully. This isn’t a new condition. This is just the final moment of a slow-motion death.
A little over five years ago my mother was formally diagnosed with Alzheimer’s. It was quite brave of her to get the testing done when she did. This had always been her most-feared scenario for aging. Growing up, we had befriended an active elderly neighbor who had gently died in her sleep after a minor slip on some ice. My mom thought that was the best exit ever. She swore Mrs. Goldsmith had come to her in a dream the next night to congratulate herself, saying “See, I told you I was lucky!” For years afterwards, my mother convinced herself that she would go in a similarly elegant way.
My mom, Liz, must have sensed that Alzheimer’s was a possibility when she scheduled that doctor’s visit. The news didn’t come as much of a surprise to us family. I had been joking for years that my mom seemed to have only twenty stories that she kept on rotation. After she read a study that crossword puzzles keep your brain sharp as we age, she became an obsessive crossword puzzler; when the Sudoku craze hit, she was right on top of it. She had bravely bought her first house in her late 60s. How proud she was. At the time she let us all know, repeatedly, that she would be leaving it “in a box.” Caulking trim, replacing windows, and troubleshooting a mud room leak that defied a dozen contractors became her occupation, along with volunteering and watching grandkids. But by 2010, she must have known she wasn’t going to have Mrs. Goldsmith’s luck. It was time to adjust.
When she called to tell me the diagnosis, she couldn’t even use the A‑word. She told me her “brain was dying” and that the doctor was putting her on Aricept. A quick Google search confirmed this was an Alzheimer’s drug and a call with the doctor later that afternoon helped map out the road ahead.
Alzheimer’s is a slow-motion death. She’s been disappearing from us for a long while. Regular outings became less frequent till we couldn’t even take her out to a nearby restaurant for her birthday. As words disappeared and speech began faltering, I’d show her recent kid photos on my phone and tell stories to fill the emptying space. Eventually she stopped showing interest even in this. On my last regular visit with her, I brought the kids and we had lots of fun taking pictures. Mom kept pointing out at the phone’s display as if it were a mirror. But conversation was too disjointed and after a few minutes, my kids started wandering in ever widening circles looking for interesting buttons and alarms to touch and pull and I had to round them up to leave.
In the past few weeks her forgetfulness has extended to eating and swallowing. Intervention would only buy a little more time until she forgot how to breathe. Alzheimer’s is a one way trip.
On my last few visits she was mostly sleeping. She’s was calm, preternaturally calm. Lying on her back, pale and peaceful, she looked as if she might already be a body resting in a casket. Only the slight rise of sheets as she breathed gave away the news that she was still with us, if barely. I felt awkward just sitting there. Some people are good in these kinds of situations, but I self-consciously struggle. With little chance of interaction, I struck on the idea of reading from a favorite book of poems that she had read to me on countless nights as a child. “Up into the cherry tree, who should climb but little me?” I don’t know if she heard me or pictured the cherry tree in her haze, but it was a way for us to be together.
The slow-motion nature of Alzheimer’s means she slept a lot until she didn’t. For reasons that go deep into biography, she was a wonderfully friendly person who didn’t have a lot of close friends anymore. It seems peculiar that one can walk upon the earth for so many decades and only have a dozen or so people notice your departure. But then maybe that’s the norm for those who live deep into their eighties. Most of us will leave life with the same kind of quiet ripples with which we entered.
My mom Liz just passed away tonight. It’s not unexpected. And sadly, given her health, it’s perhaps not even so tragic; she’s been declining for years from Alzheimer’s and all but stopped eating in recent weeks. I’m sure I’ll find voice to tell some stories in the months ahead, but for now I’ll share some pictures. She would have turned 85 next month.
A note about names: she was born in late summer 1930 as Elizabeth Ann Kleintop. In her adult life she went as Betsy and took the last names of her partners. In her late 60s she decided to take back a variation of her last name and overnight Betsy Kelley became Liz Klein.
I had the pleasure of an author chat with Jeff Perkins, executive director of Friends Fiduciary Corporation, the organization that provides financial services to Quaker meetings and is on the forefront of socially responsible investment. We talked about the kind of activism that happens on investor conference calls. Jeff’s article, Main Street Activism and Wall Street Advocacy: Strange Bedfellows?, appears in the June/July issue of Friends Journal.
Benigno Sanchez-Eppler shares the ways Friends live out our testimonies in the world.
A growing list of stories is suggesting that black churches in the South are being targeted for arson once again (although one of the more publicized cases seems to be lightning-related). This was a big concern in the mid-1990s, a time when a Quaker program stepped up to give Friends the chance to travel to the South to help rebuild. From a 1996 Friends Journal editorial:
Sometimes a news article touches the heart and moves people to reach out to one another in unexpected ways. So it was this winter when the Washington Post published a piece on the rash of fires that have destroyed black churches in the South in recent months… When Friend Harold B. Confer, executive director of Washington Quaker Workcamps, saw the article, he decided to do something about it. After a series of phone calls, he and two colleagues accepted an invitation to travel to western Alabama and see the fire damage for themselves. They were warmly received by the pastors and congregations of the three Greene County churches. Upon their return, they set to work on a plan.
I’m not sure whether Confer’s plan is the right template to follow this time, but it’s a great story because it shows the importance of having a strong grassroots Quaker ecosystem. I don’t believe the Washington Quaker Workcamps were ever a particularly well-funded project. But by 1996 they had been running for ten years and had built up credibility, a following, and the ability to cross cultural lines in the name of service. The smaller organizational size meant that a newspaper article could prompt a flurry of phone calls and visits and a fully-realized program opportunity in a remarkably short amount of time.
A first-hand account of the workcamps by Kim Roberts was published later than year, Rebuilding Churches in Rural Alabama: One Volunteer’s Experience. The D.C.-based workcamp program continues in modified form to this day as the William Penn Quaker Workcamps.
Update: another picture from 1996 Alabama, this time from one of my wife Julie’s old photo books. She’s second from the left at the bottom, part of the longer-stay contingent that Roberts mentions.

In National Geographic, Jane Braxton Little writes about the restoration of one of the most storied protest boats of the twentieth century:
The Golden Rule project is an improbable accomplishment by unlikely volunteers. Members of Veterans For Peace, they are a motley bunch that might have appalled the original crew, all conscientious Quakers. They smoke, drink and swear like the sailors, though most of them are not. Aging and perpetually strapped for money, the mostly retired men sought to banish their war-related demons as they ripped out rotten wood and replaced it plank by purpleheart plank.
Friends Journal ran an article by Jane, Restoring the Golden Rule, back in 2011 when the VFP volunteers first contemplated restoration, and a longer followup by Arnold (Skip) Oliver in 2013, The Golden Rule Shall Sail Again. Of course, the cool thing about working at a established magazine is that it was easy for me to dip into the archives and find and compile our 1958 coverage of the ship’s famous first voyage.
You ca follow more about the restoration work on the VFP Golden Rule website or check out pictures from the re-launch on their Facebook page.
